Tag Archives: deafness

Disability in Filipino women

For one school of thought, women with disabilities face “double discrimination” because of their gender and disability. Another see it as a “triple discrimination” since women with disabilities also have to live in poverty as a result of inequality in hiring, promotion rates and pay for equal work.

In the Philippines, in particular, women with disabilities are more likely to be institutionalized. They experience difficulty in attaining access to adequate housing, health, education, vocational training and employment. There were conventions—the Convention on the Elimination of all Forms of Discrimination against Women, the General Assembly resolution 63/150 of 18 December 2008, the Beijing Platform for Action, and the Convention on the Rights of Persons with Disabilities, to name a few—that ensure their rights and urges states to pay special attention to their needs but it hadn’t been enough.

Among of the disabilities common in Filipino women are poliomyelitis, blindness, and deafness.

Poliomyelitis—or simply polio—is a crippling and potentially deadly infectious disease. It can lead to paralysis and debilitate a person’s brain and spinal cord. It didn’t dishearten Gracia Cielo “Grace” Magno Padaca, though. She has become the governor of Isabela since 2004 and has received the Ramon Magsaysay Award for Public Service in 2008.

A lack of vision brought about by a severe reaction to over-the-counter medications affected the eyesight of Roselle Rodriguez Ambubuyog when she was six years old. Despite her blindness, Roselle graduated with the highest honors from the Holy Infant Montessori in 1986, Batino Elementary School in 1993, Ramon Magsaysay High School-Manila in 1997, and Ateneo de Manila University in 2001. She is currently an access technology specialist working for software and hardware companies in Europe and North America while here in the Philippines.

Deafness is the complete inability to hear sound. Its only method of treatment is a hearing aid, a device worn in the ear that amplifies the volume of sound electronically. It’s what had afflicted Ana Kristina Arce when she was born, a class valedictorian at the Philippine School for the Deaf, a magna cum laude at the De La Salle – College of Saint Benilde (CSB), and a degree holder at the Gallaudet University. She is currently the graphic artist in CSB.

Also deaf, Gilda Nakahara uses pen, paper, and the Filipino Sign Language to run the Nakahara Lodging and Travel Agency, a travel and tour business primarily for deaf people around the world. She has been recognized at the Go Negosyo Caravan for People with Disabilities in De Salle –College of St. Benilde in 2007 and has helped establish a deaf organization in  Eastern Samar.

“Everyone experiences disabilities one way or another; mine is just more obvious than yours. We are all fortunate to have loved ones, who help us bear the burdens brought about by our weaknesses. We may find ourselves in the dark, but we should not be afraid to move forward, because we have the light of our stars to count on, and to be thankful for.” ~ Roselle Rodriguez Ambubuyog

Video taken from the YouTube Channel of Osmosis

Video taken from the YouTube Channel of Molly Burke

Video taken from the YouTube Channel of Howcast

Advertisements

Disability in Filipino men

Among of the disabilities common in Filipino men are poliomyelitis, stroke, Freeman Sheldon Syndrome, blindness, chronic osteomyelitis, and deafness.

Poliomyelitis, or polio, is a disease that could cripple a person. Its virus (called the poliovirus) can spread from person to person and invade the infected person’s brain and spinal cord. It was what had afflicted Rico Marquez, a Leyte native who was still able to earn a Bachelor’s Degree in Theology at the Baptist Theological College in Cebu. He was also still able to finish master degrees in Divinity and Educational Leadership at the Golden Gate Baptist Theological Seminary in California then founded a church for the Filipinos in Pinole. He had a wife and two children.

Stroke, on the other hand, is a disease that affects the arteries leading to and within the brain. It occurs when a blood vessel that carries oxygen and nutrients is either blocked by a clot or bursts (or ruptures). It was what had caused paralysis in Fernando Kabigting’s right hand. It was also what had blinded the left eye of the painter. He just struggled to continue painting with his left hand using watercolor and had solo exhibitions at the United Nations in New York City, the Ayala Museum in Makati, and at the Italia Gallery in Bacolod.

A condition that primarily impinges on the face, hands, and feet, Freeman Sheldon Syndrome is the disorder that Raymond Martin had been born with. His unusually small mouth (microstomia) did not stop him to win gold medals, though, during the London 2012 Paralympic Games where he was recognized as the Sportsman of the Year.

Otherwise known as visual impairment, blindness refers to a lack of vision. It can be partial, which means a very limited vision; or complete, which means not being able to see anything, even light. People in third-world nations usually have poor vision and this was what Ronnel del Rio had been afflicted with. Despite his physical limitation, though, Ronnel still became a “voice of reason and awareness,” heading the Philippine Chamber of Massage Industry for Visually Impaired, the Federation of Disabled Persons in Lipa, and the PWD advocacy group Punlaka once. He also became involved with the Philippine Coalition on the United Nations Convention on the Rights of Persons with Disabilities, the Philippine Mental Health Association, and the Housing and Homesite Regulatory Affairs Office in Batangas. He has had a Master’s degree on Management Technology in De La Salle University in 2003.

Osteomyelitis is the infection of the bone and the bone marrow. It may be subdivided into acute, subacute, and—what power lifter and swimmer and mountain climber Arnold Balais is in—chronic stages. This phase did not deter him in competing for the Paralympics, ASEAN Paralympics, and the Malaysian Paralympiad, though.

Not being able to hear partially or completely has still led Romalito “Rome” Mallari to win the Best New Actor in a Movie during the 2010 Star Award for Movies. He was also nominated for a Golden Screen Award for his roles in Ganap na Babae and Dinig Sana Kita. Most recently, he was involved in the 2015 film Taklub, which was screened and well received at the Cannes Film Festival.

“Have faith that you have the potential, the capacity to succeed. God will give you strength to finish and accomplish your dreams.” ~ Rico Marquez

Video taken from the YouTube Channel of khanacademymedicine

Video taken from the YouTube Channel of HealthSketch

Video taken from the YouTube Channel of dimedcom

Video taken from the YouTube Channel of Amal Vision

Video taken from the YouTube Channel of Dr. Najeeb Lectures

Video taken from the YouTube Channel of Jessica Le

Help in Czech Republic

Established in 2000, the Czech National Disability Council (CNDC) has aimed to advocate, promote and meet the rights, interests, and needs of disabled people in the country, regardless of the type or extent of their impairment. It has collaborated with the state administration and local government at all levels as well as with organizations and institutions working in this field at both the national and regional level.

It is the advisory body of the Governmental Board for People with Disabilities. It is a member of the governing board of the national development programme Mobility for All. It is a member as well of the joint committee for the Programme of Development and Renovation of Public Transport Vehicles, and the two Boards of the Association of Cities and Municipalities.

Aside from those, the CNDC collaborates actively, too, with the Association of Regions of the Czech Republic, the Association of Employers of Disabled People in Czech Republic, and the Trade Union of Employees in Health and Social Service in the Czech Republic.

Comprising it are member organizations, among of which is the ARCUS Cancer Centre that was founded in 1993. It has helped cancer patients and their families since then under the chairmanship of John Koželská, winner of the Olga Havel signatory of the Paris Charter against Cancer.

There are also organizations specifically designed to cater Czechs with human immunodeficiency virus (HIV), cystic fibrosis, Charcot-Marie-Tooth, Huntington Disease, chronic diseases, and deafness.

The Czech AIDS Help Society was established in 1989 as a self-support initiative of PLWHIV [people living with HIV]. Through finances from grants, donations, and fees in its own activities, the Czech AIDS Help Society continues to promote HIV prevention and awareness through anonymous and free-of-charge HIV testing; shelter accommodation services to PLWHIV in its own social center, the Dum Svetla (Lighthouse); on-site HIV/AIDS counseling service in Prague and Ostrava; a national toll-free HIV/AIDS hotline; legal assistance to PLWHIV that were discriminated against; and anti-stigmatization campaigns.

The Czech Cystic Fibrosis Organization was founded in 1992 by the parents of the children who has it. Originally, it was called the Club of Parents and Friends of Children Cystic Fibrosis. The parents pass on practical experiences to each other; in early days, the club voluntarily works for several mothers of sick children. It still involved in “active” parents till this day to handle the provision of the patients, and, together with the staff, promote cooperation among the center; inform the public about cystic fibrosis; protect the legitimate interests of the patients; secure funding for the activities of the club; subsidize the necessary equipment;  and support families of CF patients with low incomes financially.

Society CMT, on the other hand, is an association founded in June 1999. Its objective is to defend, promote, and fulfill the interests and needs of those sickened with Charcot – Marie – Tooth, a neurological disorder that affect the nerves outside the brain and spinal cord, in coordination with state and local governments.

Widowed by the American folk singer Woody Guthrie who suffered from Huntington’s Disease, Marjorie founded an association for those with the rare inherited disease as well. It—the Czech Huntington Association—started to set up a self-help organization in May 14, 1991 to “map” the cause of an illness in Bohemia and Moravia characterized by progressive dementia, abnormal posture, and involuntary movements.

To prevent the “diseases of civilization” (e.g. cardiovascular disease, diabetes, asthma, allergy, oncological diseases, epilepsy, multiple sclerosis, severe renal and metabolic diseases, osteoporosis, vertebral diseases, etc.), the Union of Persons Affected by Chronic Diseases in the CR spread its network of 330 organizations in 290 towns and villages in the Czech Republic with its 55,000 members.

Those with hearing impairment, meanwhile, can go to the Czech-Moravian Unity of the Deaf. It was founded in Brno in 1998 and operates in Olomouc, Breclav, Jihlava, Pilsen, and Prague, aside from there. Its aim: unite the other associations for the hearing-impaired in the region to “effectively promote their mutual cooperation.”

This is not to say that Czechs with mental disability are neglected in the country. They are, in fact, encourage to “expand their opportunities in various fields of life” by the Society for Integration of Mentally Disabled Persons (DUHA); “live independently” by the Inclusion Czech Republic; and “take responsibility for their decisions” by the Pohoda (Comfort).

The Association for Complex Care of People with Cerebral Palsy would inform the public everything that has to be learned about the disease. The DEMKA Club would work with the families of PWDs in reacquainting themselves with the rest of the society.

The Czech Paraplegics Association (CZEPA) would protect the rights and interests of people afflicted with spinal cord injury (SCI). The Union for Rehabilitation of Persons with Cerebral Vascular Accidents would look after Czechs sickened with stroke.

Other organizations for PWDs in the country are the Association of Physically Handicapped in the Czech Republic, Association of  Persons with Disabilities and Their Friends, Helping Hand, Home For Me, Assistence O.P.S., Association of Parents and Friends of Handicapped children in the Czech Republic, and Czech Abilympijská Association.

“The only disability in life is a bad attitude.” ~ Scott Hamilton

Video taken from the YouTube Channel of Flux Us

Standard label?

How could the members of the world’s largest minority be known in a variety of names?

The Philippines has officially referred to them as “disabled persons” last July 22, 1991. Section 4 of the Republic Act No. 7277 has defined them as “those suffering from restriction or different abilities, as a result of a mental, physical or sensory impairment, to perform an activity in the manner or within the range considered normal for a human being.”

Fifteen years later, though, the law that was otherwise entitled as the Magna Carta for Disabled Persons was amended and Section 4 of the Republic Act No. 9442 renamed every disabled person in the country as a “person with disability.” The title of Republic Act No. 7277 was changed to the “Magna Carta for Persons with Disability” and all references to “disabled persons” to “persons with disability”.

This must be the reason why Americans with a disability are labelled as “individuals with a disability”; Canadians and Vietnamese with a disability as “people with disabilities”; and Indians with a disability as “persons with disabilities.”

Moldovans with a disability are “invalid,” though—a portrayal that The Rhythmic Arts Project has claimed to “elicit unwanted sympathy, or worse, pity toward individuals with disabilities.” TRAP has further advised to use the terms person with a disability; people with disabilities; has a disability; or have disabilities instead.

If someone is using a wheelchair to move around, describe her as a “wheelchair user.” What some may classify as a “birth defect” or “affliction” is actually a “congenital disability” or “birth anomaly.”

There’s no need to describe someone as “a victim of [the physical condition]” when you can just say “has a [the physical condition]”. It could also be “has had [the physical condition]”; “experienced [the physical condition]”; or “has a disability as a result of [the physical condition].”

A “person with Down Syndrome” is different from a “Down’s person” or “Mongoloid” (the last two terms are simply derogatory). A “person who has epilepsy/people with seizure disorders or epileptic episodes” is also not the same as an “epileptic.”

Those that some in the society claim “the mentally ill,” “crazy,” “psycho,” or “mental case” should just be termed “people who have mental illness” or “person with a mental or emotional disorder.” Those it call “blind-hearing impaired,” “deaf-mute,” or “deaf and dumb” should be identified as “people who are blind,” “visually impaired,” “person who is hard of hearing,” “person who is deaf,” or “the Deaf.” Deafness is a cultural phenomenon and should be capitalized in this particular instance.

“The use of outdated language and words to describe people with disabilities (PWDs) contributes greatly to perpetuating old stereotypes.” ~ The Rhythmic Arts Project

Video taken from the website of the Disability Horizons

On Technology

Last year’s International Day of Persons with Disabilities focused on the role of technology in (1) disaster risk reduction and emergency responses, (2) creating enabling working environments, and (3) disability-inclusive sustainable development goals. Persons with disabilities (PWDs) can benefit from it, the secretary general of the United Nations believed, only that ‘too many lack access to these essential tools.’

The special rapporteur on the rights of PWDs and the special envoy of the secretary-general on Disability and Accessibility even congratulated the organization’s member states ‘for promising advances in a post-2015 development agenda which is sustainable, inclusive and accessible.’ The 151 member states have been ensuring the realization of Article 11 of the Convention on the Rights of Persons with Disabilities (CRPD) as well as the commitment of the special representative of the secretary-general on Disaster Risk Reduction; Japan; and the Nippon Foundation.

There really is no doubt that adaptive, assistive and inclusive technology can let PWDs ‘make the most of their potential in their communities and in the workplace.’ All of them can increase, maintain, and improve the functional capabilities of PWDs.

But 80% of the PWDs are in third-world countries. They have not much money to spend for food, more so for an electronic device that could help them do the most basic of things. Nothing else could alleviate this fact except for more understanding on climate change and special education for all.

PWDs have a higher prevalence of mortality during disaster situations—up to 2 to 4 times—compared to non-PWDs ‘due to inaccessible evacuation, response (including shelters, camps, and food distribution), and recovery efforts.’ Simply using mass transit, reusing a grocery sack, eating nutritiously, and unplugging electronic devices that are not in use can assuage the impacts of climate change.

Prevention is better than cure, too. And there’s no other way through it but an increased awareness only special education to everybody could bring. Each of the illness leading to disability has been caused by a factor or two. It would be wise to understand why it has been so. Moreover, all of us either are or will become disabled during the course of our lives. How technology can be accessed affordably should be thought of as well as how to solve climate change and how to provide special education to all.

“On this day in which we remind ourselves of the situation of persons with disabilities around the globe, it is important, first of all, to resist the temptation to think in terms of ‘us’ and ‘them’. Instead we must remind ourselves that disability is part of the human condition: all of us either are or will become disabled to one degree or another during the course of our lives.” ~WHO Director-General Dr Margaret Chan’s message on the International Day of Persons with Disabilities 2014 (IDPD, 2014)