Tag Archives: deafness

Help in Czech Republic

Established in 2000, the Czech National Disability Council (CNDC) has aimed to advocate, promote and meet the rights, interests, and needs of disabled people in the country, regardless of the type or extent of their impairment. It has collaborated with the state administration and local government at all levels as well as with organizations and institutions working in this field at both the national and regional level.

It is the advisory body of the Governmental Board for People with Disabilities. It is a member of the governing board of the national development programme Mobility for All. It is a member as well of the joint committee for the Programme of Development and Renovation of Public Transport Vehicles, and the two Boards of the Association of Cities and Municipalities.

Aside from those, the CNDC collaborates actively, too, with the Association of Regions of the Czech Republic, the Association of Employers of Disabled People in Czech Republic, and the Trade Union of Employees in Health and Social Service in the Czech Republic.

Comprising it are member organizations, among of which is the ARCUS Cancer Centre that was founded in 1993. It has helped cancer patients and their families since then under the chairmanship of John Koželská, winner of the Olga Havel signatory of the Paris Charter against Cancer.

There are also organizations specifically designed to cater Czechs with human immunodeficiency virus (HIV), cystic fibrosis, Charcot-Marie-Tooth, Huntington Disease, chronic diseases, and deafness.

The Czech AIDS Help Society was established in 1989 as a self-support initiative of PLWHIV [people living with HIV]. Through finances from grants, donations, and fees in its own activities, the Czech AIDS Help Society continues to promote HIV prevention and awareness through anonymous and free-of-charge HIV testing; shelter accommodation services to PLWHIV in its own social center, the Dum Svetla (Lighthouse); on-site HIV/AIDS counseling service in Prague and Ostrava; a national toll-free HIV/AIDS hotline; legal assistance to PLWHIV that were discriminated against; and anti-stigmatization campaigns.

The Czech Cystic Fibrosis Organization was founded in 1992 by the parents of the children who has it. Originally, it was called the Club of Parents and Friends of Children Cystic Fibrosis. The parents pass on practical experiences to each other; in early days, the club voluntarily works for several mothers of sick children. It still involved in “active” parents till this day to handle the provision of the patients, and, together with the staff, promote cooperation among the center; inform the public about cystic fibrosis; protect the legitimate interests of the patients; secure funding for the activities of the club; subsidize the necessary equipment;  and support families of CF patients with low incomes financially.

Society CMT, on the other hand, is an association founded in June 1999. Its objective is to defend, promote, and fulfill the interests and needs of those sickened with Charcot – Marie – Tooth, a neurological disorder that affect the nerves outside the brain and spinal cord, in coordination with state and local governments.

Widowed by the American folk singer Woody Guthrie who suffered from Huntington’s Disease, Marjorie founded an association for those with the rare inherited disease as well. It—the Czech Huntington Association—started to set up a self-help organization in May 14, 1991 to “map” the cause of an illness in Bohemia and Moravia characterized by progressive dementia, abnormal posture, and involuntary movements.

To prevent the “diseases of civilization” (e.g. cardiovascular disease, diabetes, asthma, allergy, oncological diseases, epilepsy, multiple sclerosis, severe renal and metabolic diseases, osteoporosis, vertebral diseases, etc.), the Union of Persons Affected by Chronic Diseases in the CR spread its network of 330 organizations in 290 towns and villages in the Czech Republic with its 55,000 members.

Those with hearing impairment, meanwhile, can go to the Czech-Moravian Unity of the Deaf. It was founded in Brno in 1998 and operates in Olomouc, Breclav, Jihlava, Pilsen, and Prague, aside from there. Its aim: unite the other associations for the hearing-impaired in the region to “effectively promote their mutual cooperation.”

This is not to say that Czechs with mental disability are neglected in the country. They are, in fact, encourage to “expand their opportunities in various fields of life” by the Society for Integration of Mentally Disabled Persons (DUHA); “live independently” by the Inclusion Czech Republic; and “take responsibility for their decisions” by the Pohoda (Comfort).

The Association for Complex Care of People with Cerebral Palsy would inform the public everything that has to be learned about the disease. The DEMKA Club would work with the families of PWDs in reacquainting themselves with the rest of the society.

The Czech Paraplegics Association (CZEPA) would protect the rights and interests of people afflicted with spinal cord injury (SCI). The Union for Rehabilitation of Persons with Cerebral Vascular Accidents would look after Czechs sickened with stroke.

Other organizations for PWDs in the country are the Association of Physically Handicapped in the Czech Republic, Association of  Persons with Disabilities and Their Friends, Helping Hand, Home For Me, Assistence O.P.S., Association of Parents and Friends of Handicapped children in the Czech Republic, and Czech Abilympijská Association.

“The only disability in life is a bad attitude.” ~ Scott Hamilton

Video taken from the YouTube Channel of Flux Us

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Standard label?

How could the members of the world’s largest minority be known in a variety of names?

The Philippines has officially referred to them as “disabled persons” last July 22, 1991. Section 4 of the Republic Act No. 7277 has defined them as “those suffering from restriction or different abilities, as a result of a mental, physical or sensory impairment, to perform an activity in the manner or within the range considered normal for a human being.”

Fifteen years later, though, the law that was otherwise entitled as the Magna Carta for Disabled Persons was amended and Section 4 of the Republic Act No. 9442 renamed every disabled person in the country as a “person with disability.” The title of Republic Act No. 7277 was changed to the “Magna Carta for Persons with Disability” and all references to “disabled persons” to “persons with disability”.

This must be the reason why Americans with a disability are labelled as “individuals with a disability”; Canadians and Vietnamese with a disability as “people with disabilities”; and Indians with a disability as “persons with disabilities.”

Moldovans with a disability are “invalid,” though—a portrayal that The Rhythmic Arts Project has claimed to “elicit unwanted sympathy, or worse, pity toward individuals with disabilities.” TRAP has further advised to use the terms person with a disability; people with disabilities; has a disability; or have disabilities instead.

If someone is using a wheelchair to move around, describe her as a “wheelchair user.” What some may classify as a “birth defect” or “affliction” is actually a “congenital disability” or “birth anomaly.”

There’s no need to describe someone as “a victim of [the physical condition]” when you can just say “has a [the physical condition]”. It could also be “has had [the physical condition]”; “experienced [the physical condition]”; or “has a disability as a result of [the physical condition].”

A “person with Down Syndrome” is different from a “Down’s person” or “Mongoloid” (the last two terms are simply derogatory). A “person who has epilepsy/people with seizure disorders or epileptic episodes” is also not the same as an “epileptic.”

Those that some in the society claim “the mentally ill,” “crazy,” “psycho,” or “mental case” should just be termed “people who have mental illness” or “person with a mental or emotional disorder.” Those it call “blind-hearing impaired,” “deaf-mute,” or “deaf and dumb” should be identified as “people who are blind,” “visually impaired,” “person who is hard of hearing,” “person who is deaf,” or “the Deaf.” Deafness is a cultural phenomenon and should be capitalized in this particular instance.

“The use of outdated language and words to describe people with disabilities (PWDs) contributes greatly to perpetuating old stereotypes.” ~ The Rhythmic Arts Project

Video taken from the website of the Disability Horizons

On Technology

Last year’s International Day of Persons with Disabilities focused on the role of technology in (1) disaster risk reduction and emergency responses, (2) creating enabling working environments, and (3) disability-inclusive sustainable development goals. Persons with disabilities (PWDs) can benefit from it, the secretary general of the United Nations believed, only that ‘too many lack access to these essential tools.’

The special rapporteur on the rights of PWDs and the special envoy of the secretary-general on Disability and Accessibility even congratulated the organization’s member states ‘for promising advances in a post-2015 development agenda which is sustainable, inclusive and accessible.’ The 151 member states have been ensuring the realization of Article 11 of the Convention on the Rights of Persons with Disabilities (CRPD) as well as the commitment of the special representative of the secretary-general on Disaster Risk Reduction; Japan; and the Nippon Foundation.

There really is no doubt that adaptive, assistive and inclusive technology can let PWDs ‘make the most of their potential in their communities and in the workplace.’ All of them can increase, maintain, and improve the functional capabilities of PWDs.

But 80% of the PWDs are in third-world countries. They have not much money to spend for food, more so for an electronic device that could help them do the most basic of things. Nothing else could alleviate this fact except for more understanding on climate change and special education for all.

PWDs have a higher prevalence of mortality during disaster situations—up to 2 to 4 times—compared to non-PWDs ‘due to inaccessible evacuation, response (including shelters, camps, and food distribution), and recovery efforts.’ Simply using mass transit, reusing a grocery sack, eating nutritiously, and unplugging electronic devices that are not in use can assuage the impacts of climate change.

Prevention is better than cure, too. And there’s no other way through it but an increased awareness only special education to everybody could bring. Each of the illness leading to disability has been caused by a factor or two. It would be wise to understand why it has been so. Moreover, all of us either are or will become disabled during the course of our lives. How technology can be accessed affordably should be thought of as well as how to solve climate change and how to provide special education to all.

“On this day in which we remind ourselves of the situation of persons with disabilities around the globe, it is important, first of all, to resist the temptation to think in terms of ‘us’ and ‘them’. Instead we must remind ourselves that disability is part of the human condition: all of us either are or will become disabled to one degree or another during the course of our lives.” ~WHO Director-General Dr Margaret Chan’s message on the International Day of Persons with Disabilities 2014 (IDPD, 2014)