Tag Archives: Autism

Disability in order

Countries with institutions on social security are one and the same in considering the following disabilities to be given benefits (in alphabetical order) –

ADHD – Attention Deficit Hyperactivity Disorder

Alcohol or Drug Addiction

Allergies

Alopecia areata

Amputation

Anxiety Disorder

Arthritis

Asthma

Autism and Asperger’s

Bipolar Disorder

Burn Injury

Carpal Tunnel Syndrome

Celiac disease

Charcot-Marie-Tooth disease

Chronic Migraines

Chronic Pain

Cleft lip and palate

COPD and Emphysema

Coronary Artery Disease

Crohn’s Disease

Crohn’s disease

Cystic fibrosis

Degenerative Disc Disease

Depression

Diabetes

Disorders of the Spine

Dwarfism

Dyscalculia

Eating disorders

Eczema

Endometriosis

Epilepsy

Fetal alcohol syndrome

Fibromyalgia

GERD (Gastroesophageal Reflux Disease)

Gout

Growth hormone deficiency

Hearing Loss

Heart Failure

Hepatitis

High Blood Pressure

HIV/AIDS

Huntington’s disease

Inflammatory bowel disease

Interstitial Cystitis

Irritable Bowel Syndrome

Kidney Failure

Lactose intolerance

Liver Disease

Lupus, or systemic lupus erythmaosus

Lyme Disease

Mono(nucleosis)

Multiple sclerosis (MS)

Muscular dystrophy

Narcolepsy

Neuropathy, Peripheral Neuropathy

Obesity

Obsessive compulsive disorder (OCD)

Organic Mental Disorders (incuding Organic Brain Syndrome)

Panic Attacks

Polycystic ovary syndrome (PCOS)

Psorias

PTSD, Post Traumatic Stress Disorder

Rheumatoid Arthritis

RSD, or Reflex Sympathetic Dystrophy

Ruptured Disc

Schizophrenia

Scleroderma

Scoliosis

Seizure Disorder

Sickle cell anemia

Sleep Apnea

Spina bifida

Spinal cord injury

Stroke (CVA, Cerebrovascular Accident)

Thyroid disease

Tourette syndrome

Traumatic Brain Injury, or TBI

Turner syndrome

Ulcerative Colitis

Ulcerative colitis

Ulcers

Vision Loss

Williams syndrome

There are disabilities, though, that are “invisible.” Examples of these are renal failure, agoraphobia, arachnoiditis, Coeliac Disease, Ehlers Danlos Syndrome, Fructose Malabsorption, Hyperhidrosis, Hypoglycemia, Interstitial Cystitis, Myasthenia Gravis, Reflex Sympathetic Dystrophy, Schnitzler’s Syndrome, Scleroderma, Sjagren’s syndrome, Temporomandibular Joint Disorder, and Transverse Myelitis.

It is, thus, necessary, beneficial, and practicable to integrate special education (SPED) in the basic and secondary curriculum of every country.

One doesn’t have to finish grade school and high school first before being given the option to study SPED.

A certain illness could be discovered and considered a disability at any given moment, too.

SPED would be the saying “prevention is better than cure” practiced.

Currently, 19% of the less educated people have disabilities1. Eighty percent of the PWDs, too, live in developing countries2.

Disability rates are significantly higher, too, among the member countries of the Organization for Economic Cooperation and Development (OECD) with lower educational attainment.

“We have a responsibility to ensure that every individual has the opportunity to receive a high-quality education, from prekindergarten to elementary and secondary, to special education, to technical and higher education and beyond.” ~ Jim Jeffords

1 Based on the information collated by the United Nations

2 Based on the information collated by the UN Development Programme

 

Video from the YouTube Cannel of Julia Davila

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THOC2

Judging from how persons with disabilities (PWDs) in Moldova can still study, defend themselves, and live independently, the UN Convention on the Rights of Persons with Disabilities (CRPD) reported that the said country ’has made significant strides to further advancing the rights of children and adults with disabilities in the country’. Its education system has become more inclusive and community-based services have been developed.

Many, however, continue to be denied the support they need to be fully included in the Moldovan society. Many processes regarding the educational system and community-based programs are far from complete, too. In particular are the 1,716 children with mental or intellectual impairments that remain in segregated educational institutions. Not all of them are receiving support they need to access inclusive schooling.

About 3,000 to 4,000 Moldovans are ‘stripped of the right to decide for themselves, and are under the control of guardians’. Many were reported to be leaving PWDs in closed institutions against their will, using the disability allowances of the latter, controlling their assets, and prohibiting them from basic socio-legal acts.

The PWD Forum could only hope that the finding of Dr. Raman Sharma from the University of Adelaide’s Robinson Research Institute will lessen cases of intellectual disability. Together with some researchers from Europe, he has discovered the “novel gene,” which when mutated, causes intellectual disability in 1 in 50 individuals.

“We have identified four mutations in the THOC2 gene in four families. The defected gene is found in males who have an intellectual disability – females in the families are carriers of the gene mutation but are not affected by the condition. Protein coded by the THOC2 gene is part of a large protein complex that is fundamental for all living human cells and essential for normal development and function,” Dr. Sharma, lead author of the paper, was quoted in the American Journal of Human Genetics.

To date, Dr. Sharma is poised to know more about familial gene mutations.

“But that’s just the first step. Before we can develop a treatment for a condition, we first need to understand what is going on in the body and discover how a specific defected gene causes a particular disease.”

“Advanced genetic technologies have accelerated the discovery of genes responsible for diseases like epilepsy, autism, intellectual disability and other neurological disorders. But the number of genetic conditions in which we have functional understanding of the mutated genes can be counted on two hands.”

Video taken from the YouTube Channel of the Biology Videos

Autism

The most severe form of autism spectrum disorder (ASD), autism is a pervasive developmental disorder characterized by severe deficits in social interaction and communication, by an extremely limited range of activities and interests, and often by the presence of repetitive, stereotyped behaviors. The role of genetics and environmental factors in its cause is still being studied while theory factoring on parental practices has long been disproved.

Symptoms of autism improve with treatment and with age. Children whose language skills regress before the age of 3 may develop a higher risk of developing epilepsy. Adolescents may become depressed. Services and support are then vital for them to be able to work successfully and live independently. Autismspeaks.org has listed the various sites  linking to how technology can assist PWDs with autism.

Portable computers—iPad or tablet—can encourage communication; the screen just have to be touch to be activated. There are apps that come with plenty of pictures, too, for beginning language learners or scheduling apps with visual support. Recently, Drs. Connie Kasari and Ann Kaiser along with team members, Drs. Charlotte Mucchetti, Stephanie Shire from UCLA and Dr. Courtney Wright from Vanderbilt University have found out that speech generating devices (SGD) aid social communication.

These application programs are listed in this site while the suggestions on how to set up a portable computer are discussed in another.

Meanwhile, Rosalind Picard, founder of the Affective Computing Research Group at Massachusetts Institute of Technology’s Media Lab, is finding out how a facial recognition software with Google Glass can be used to identify emotions. Other devices can also teach simple tasks, social skills, interaction with a computer-simulated environment, or steps in a specific activity such as robots, social stories, video modelling, and virtual reality.

“Autism is like a rainbow. It has a bright side and a dark side. Even though it can mean rough weather, it can be beautiful.” ~Lacy Bella Designs

Video taken from the YouTube Channel of the behaviorfrontiers

Asperger Syndrome

Asperger syndrome is a psychological condition characterized by obsessive and rigid behavior, poor communication skills, clumsiness, and a lack of empathy and reciprocity. State-funded outreach workers asserted that the condition had ‘exploded’ in Silicon Valley over the past 20 years and common among start-up founders of Internet companies. There is no clear consensus about it till today, however; it could just be a mild form of autism, a developmental disorder characterized by severe deficits in social interaction and communication.

Although it could last a lifetime, Asperger syndrome has no cure. But there is an ideal treatment plan: improve the social skills of the patients as well as their behavior management. There is the OASIS @ MAAP: The Online Asperger Syndrome Information and Support Center where one can learn about this condition.

Also, while those with Asperger’s may be especially interested in video games, computers, or other screen-based media such as TV, it is advised to keep them out of their bedroom so that they wouldn’t be likely to sleep fewer hours and develop worse symptoms.

Those with Asperger’s would have poor handwriting. Make homework easier by typing schoolwork. Short videos of social stories available as apps for iPod Touch, iPads and smartphones can help those with Asperger’s navigate through social situations such as in how to carry on a conversation, how to compliment someone, how to resolve conflict, how to respect other people’s boundaries and other common social situations. Extant empirical literature also suggests that assistive technology—the iPad, for one—is an effective method of improving the emotional recognition of those with Asperger’s. These devices allow a close-to-real-life practice of turn taking, greetings, salutations, and eye contact.

“A person with autism lives in his own world, while a person with Asperger’s lives in our world, in a way of his own choosing.” ~Nicholas Sparks

Video taken from the YouTube Channel of The National Center for Learning Disabilities